The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence

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The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence. / Behrendt, Christian-Alexander; Müller, Tobias; Venermo, Maarit; Altreuther, Martin; Szeberin, Zoltán; Boyle, Jonathan R; Mani, Kevin.

in: EUR J VASC ENDOVASC, Jahrgang 60, Nr. 6, 15.12.2020, S. 942-943.

Publikationen: SCORING: Beitrag in Fachzeitschrift/ZeitungAndere (Vorworte u.ä.)Forschung

Harvard

Behrendt, C-A, Müller, T, Venermo, M, Altreuther, M, Szeberin, Z, Boyle, JR & Mani, K 2020, 'The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence', EUR J VASC ENDOVASC, Jg. 60, Nr. 6, S. 942-943. https://doi.org/10.1016/j.ejvs.2020.08.036

APA

Behrendt, C-A., Müller, T., Venermo, M., Altreuther, M., Szeberin, Z., Boyle, J. R., & Mani, K. (2020). The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence. EUR J VASC ENDOVASC, 60(6), 942-943. https://doi.org/10.1016/j.ejvs.2020.08.036

Vancouver

Behrendt C-A, Müller T, Venermo M, Altreuther M, Szeberin Z, Boyle JR et al. The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence. EUR J VASC ENDOVASC. 2020 Dez 15;60(6):942-943. https://doi.org/10.1016/j.ejvs.2020.08.036

Bibtex

@article{a166763abd45434b84f679c9f2f5790e,
title = "The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence",
abstract = "Between 1997 and today, the history of the VASCUNET collaboration 1 has been accompanied by various milestones of the digital revolution. In 1998, when only 1% of European inhabitants used the internet, a company known for the most popular search engine was founded in a garage in California, USA. Subsequently, the increasing data exchange between the European Union (EU) and the US led to the “Safe Harbour” agreement in 2000. While in 1993 only 3% of the world's information was stored digitally, this proportion increased to 96% in 2007. 2 Shortly afterwards, in 2008, the catchphrase “big data” was introduced to the biomedical community, 3 and only four years later, it wasn't surgeon but data scientist that was voted “the sexiest job of the 21st century”. 4 These rapid developments led to both opportunities and challenges for real world research using clinical and administrative registries. Research groups proved that the concept of data privacy is a complex and fragile construct. 5 Recently, the “EU–US Privacy Shield” agreement, a continuation of the “Safe Harbour”, agreement allowing transatlantic data transfer, collapsed over a decision of the European Court of Justice, creating a legislative vacuum in this field.",
keywords = "Confidentiality/legislation & jurisprudence, European Union, Humans, Registries, Vascular Surgical Procedures",
author = "Christian-Alexander Behrendt and Tobias M{\"u}ller and Maarit Venermo and Martin Altreuther and Zolt{\'a}n Szeberin and Boyle, {Jonathan R} and Kevin Mani",
note = "Editorial Material",
year = "2020",
month = dec,
day = "15",
doi = "10.1016/j.ejvs.2020.08.036",
language = "English",
volume = "60",
pages = "942--943",
journal = "EUR J VASC ENDOVASC",
issn = "1078-5884",
publisher = "Elsevier",
number = "6",

}

RIS

TY - JOUR

T1 - The VASCUNET Manifesto on Data Privacy Compliant Real World Evidence

AU - Behrendt, Christian-Alexander

AU - Müller, Tobias

AU - Venermo, Maarit

AU - Altreuther, Martin

AU - Szeberin, Zoltán

AU - Boyle, Jonathan R

AU - Mani, Kevin

N1 - Editorial Material

PY - 2020/12/15

Y1 - 2020/12/15

N2 - Between 1997 and today, the history of the VASCUNET collaboration 1 has been accompanied by various milestones of the digital revolution. In 1998, when only 1% of European inhabitants used the internet, a company known for the most popular search engine was founded in a garage in California, USA. Subsequently, the increasing data exchange between the European Union (EU) and the US led to the “Safe Harbour” agreement in 2000. While in 1993 only 3% of the world's information was stored digitally, this proportion increased to 96% in 2007. 2 Shortly afterwards, in 2008, the catchphrase “big data” was introduced to the biomedical community, 3 and only four years later, it wasn't surgeon but data scientist that was voted “the sexiest job of the 21st century”. 4 These rapid developments led to both opportunities and challenges for real world research using clinical and administrative registries. Research groups proved that the concept of data privacy is a complex and fragile construct. 5 Recently, the “EU–US Privacy Shield” agreement, a continuation of the “Safe Harbour”, agreement allowing transatlantic data transfer, collapsed over a decision of the European Court of Justice, creating a legislative vacuum in this field.

AB - Between 1997 and today, the history of the VASCUNET collaboration 1 has been accompanied by various milestones of the digital revolution. In 1998, when only 1% of European inhabitants used the internet, a company known for the most popular search engine was founded in a garage in California, USA. Subsequently, the increasing data exchange between the European Union (EU) and the US led to the “Safe Harbour” agreement in 2000. While in 1993 only 3% of the world's information was stored digitally, this proportion increased to 96% in 2007. 2 Shortly afterwards, in 2008, the catchphrase “big data” was introduced to the biomedical community, 3 and only four years later, it wasn't surgeon but data scientist that was voted “the sexiest job of the 21st century”. 4 These rapid developments led to both opportunities and challenges for real world research using clinical and administrative registries. Research groups proved that the concept of data privacy is a complex and fragile construct. 5 Recently, the “EU–US Privacy Shield” agreement, a continuation of the “Safe Harbour”, agreement allowing transatlantic data transfer, collapsed over a decision of the European Court of Justice, creating a legislative vacuum in this field.

KW - Confidentiality/legislation & jurisprudence

KW - European Union

KW - Humans

KW - Registries

KW - Vascular Surgical Procedures

UR - http://www.scopus.com/inward/record.url?scp=85091234515&partnerID=8YFLogxK

U2 - 10.1016/j.ejvs.2020.08.036

DO - 10.1016/j.ejvs.2020.08.036

M3 - Other (editorial matter etc.)

C2 - 32952035

VL - 60

SP - 942

EP - 943

JO - EUR J VASC ENDOVASC

JF - EUR J VASC ENDOVASC

SN - 1078-5884

IS - 6

ER -